The list below shows the meetings we are currently offering online. For additional information on a particular meeting, click on the corresponding "More Information" link.
At Risk / Not Tested Support Group This HDSA group is for adults age 18 and up who are at risk for HD. This group will have monthly meetings with changing leaders and varied members due to their geography. Members will get support from those in similar situations as they cope with their at risk status.
Caregiver Support Group in Spanish- En Español
Closed Support Group
Gene negative in an HD family Testing negative for the HD gene can present its own set of feelings. Join others who want to remain active in the HD community and with their family but carry some unease about their negative gene status.
HD Positive, Early Symptoms Early stage participants are independently managing their own lives, but may be experiencing subtle changes such as difficulty concentrating, anxiety and depression, and some physical symptoms. This is a new group for those looking to talk with other in similar life situations about how HD impacts their lives early in the disease. Those attending will be from across the country and membership and leaders will likely change from month to month. Video capability is required.
HD Positive, Pre-Symptomatic THis Support group is for those that have tested HD positive but are not manifesting symptoms.
HDSA At Risk Support Group Ages 18-29 This HDSA young adult and youth group is open to at risk youth 18-29 years old who are affected by HD.
HDSA At Risk Support Group Ages 30+ This HDSA group is for adults age 30 and up who are at risk for HD.
HDSA Caregiver Support Group This HDSA group is open to caregivers of a loved one with HD who does not have access to an in person group because of distance, time constraints or difficulty with a loved one traveling to group or leaving a loved one alone. The group will meet monthly with a changing leader and changing members due to expanded geography.
HDSA Youth Support Group 18-29 This HDSA young adult and youth group is open to youth 18-25 years old who are affected by HD. The group will start with quarterly meetings and the group will decide if meetings more often will be beneficial.
HDSA Youth Support Group Ages 12-17 This HDSA young adult and youth group is open to youth 12-17 years old who are affected by HD.
Parent Caregiver This is a new group for any parent caring for a young or adult child with HD. Members and leaders will likely change from month to month due to expanded geography.