The list below shows the meetings we are currently offering online. For additional information on a particular meeting, click on the corresponding "More Information" link.
25-45 Tested +, no symptoms
This is a new group for those looking to talk with others in similar life situations about how HD impacts their lives before any obvious symptoms. Those attending will be from across the country and membership and leaders will likely change from month to month.
At Risk / Not Tested Support Group
This HDSA group is for adults age 18 and up who are at risk for HD. This group will have monthly meetings with changing leaders and varied members due to their geography. Members will get support from those in similar situations as they cope with their at risk status.
Closed Support Group
HDSA Caregiver Support Group
This HDSA group is open to caregivers of a loved one with HD who does not have access to an in person group because of distance, time constraints or difficulty with a loved one traveling to group or leaving a loved one alone. The group will meet monthly with a changing leader and changing members due to expanded geography.
HDSA Youth Support Group 18-25
This HDSA young adult and youth group is open to youth 18-25 years old who are affected by HD. The group will start with quarterly meetings and the group will decide if meetings more often will be beneficial.
This is a new group for any parent caring for a young or adult child with HD. Members and leaders will likely change from month to month due to expanded geography.
Here's how to reach us:
Huntington's Disease Society of America
505 Eighth Avenue / Suite 902
New York New York 10018
800-345-HDSA Email Website
Copyright © 2019, Huntington's Disease Society of America