The list below shows the meetings we are currently offering online. For additional information on a particular meeting, click on the corresponding "More Information" link.
At Risk / Not Tested Support Group This HDSA group is for adults age 18 and up who are at risk for HD. This group will have monthly meetings with changing leaders and varied members due to their geography. Members will get support from those in similar situations as they cope with their at risk status.
At Risk/ Gene Positive
Beginning your HD Journey
Caregiver Support Group in Spanish- En Español
Closed Support Group- Caregivers
Family Planning Starting a family is a major life event, and when you’re impacted by HD that can add additional weight to this decision. Join us along with a genetic counselor to discuss options for planning a family, learn what’s available, and talk through what options might be best for you and your future family.
HD Positive, Early Symptoms Early stage participants are independently managing their own lives, but may be experiencing subtle changes such as difficulty concentrating, anxiety and depression, and some physical symptoms. This is a new group for those looking to talk with other in similar life situations about how HD impacts their lives early in the disease. Those attending will be from across the country and membership and leaders will likely change from month to month. Video capability is required.
HD Positive, Pre-Symptomatic THis Support group is for those that have tested HD positive but are not manifesting symptoms.
HDSA Caregiver Support Group This HDSA group is open to caregivers of a loved one with HD who does not have access to an in person group because of distance, time constraints or difficulty with a loved one traveling to group or leaving a loved one alone. The group will meet monthly with a changing leader and changing members due to expanded geography.
HDSA Young Adults Support Group
Juvenile HD Support Group Our JHD support group is a place to share similar experiences where others can understand issues specific to JHD. A safe space where families come together to support each other in the struggles and accomplishments, sharing possibilities that we might not have thought about on our own, having the resources from others who have already experienced this path and what worked for them, having the love, support and acceptance from a group of people going through the same thing.